I can predict
your future
“How long does she have to live?” I found myself sucked in to wanting to ask this question
when Emmalee, my nine-year-old, was diagnosed with liver cancer.
Do we always get an accurate and helpful answer when we ask medical
professionals to predict the future?
I wanted to know what the averages were, but didn’t want to be pushed
into some timeframe or worse have Emmalee believe she only had a certain amount
of time left.
In my book, “Dragonfly
Wings for Emmalee”, I described an experience I had with a doctor who
barged into Emmalee’s hospital room and proceeded to tell me, in front of
Emmalee, that she had six months, a year, two at the most to live. Needless to say I was very upset about
this and I asked to the doctor to step outside. This interaction occurred right after her first, all night
IV drip, of chemotherapy. It was
obviously totally inappropriate to do that in front of Emmalee, who was only
eight at the time. Second, does
any doctor have the right to be that specific in telling a patient when they
will die from and illness? Is it
in any doctors or patients best interest to be that specific about their
future?
While working as a counselor in the mental health field for
the last 20 years, I would get asked periodically to predict what the grieving
process would look like after a client experienced a loss. I remember one woman who was struggling
with the loss of her daughter, telling me that her therapist told her that it
had been a year and a half since her daughter passed and she should not still
be grieving. I have had a number
of clients tell me similar stories of counselors telling them how long they
should grieve for and how they will and should feel throughout the grieving process.
In 1969 Elizabeth Kubler-Ross MD tried to answer these inquires
about grief and loss with specific stages that people might go through while
dying and then after a loss. Denial,
anger, bargaining, depression and acceptance are the five stages she introduced
to the public. I think in part
these stages came about as a result of wanting to help and predict for people
what might lie ahead for them while dying or after a loss. It also gave therapists a way to try to
build rapport with their patients by telling them, “I know what lies ahead keep
coming back and I can guide you through these stages and figure out how your
emotions fit into these stages.”
I think there are two problems that are going on here. One is that people who are in the
helping professions want to feel intelligent and have all the answers so they
get sucked in to offering answers to these prediction questions. Second, consumers of health care are
asking for specific answers that might not be readily available. As consumers we need to not get sucked
into asking for predictions of the future but asking more specific questions
like, “What have other people who have lost a child experienced and how did
they get through it?” Not how long
will it take to get through the grief.
If a person is told a time frame it may hinder potential growth or if
their not done grieving then it could cause them to feel something is wrong.
Before my wife died in 2003 and then my daughter in 2009, I
used to teach clients about the stages of grief. It was all that I knew and had been taught in graduate school. I will never again offer up these
stages to clients.
Why does it hurt people to predict so specifically what
stages they may go through after a loss?
It may provide false hope for their future or could provide a dim
picture of their future, depending on their psychological makeup. It can stifle the client’s emotional
growth. What if they have panic
and anxiety as their paramount feeling they experience and they are told they
will have anger and depression?
What if they get to acceptance and don’t stay there? There could be a hundred what ifs here.
How should doctors and mental health professionals handle
these type of inquires? First let
me address doctors. Let go of your
ego. You don’t need to pretend
that you have all the answers and that you can look into your crystal ball and
predict the future. I think you
believe that it makes you feel more intelligent and you believe it helps your
clients trust you if you get their future right. It does the patient a disservice and may make you look very
bad if your prediction doesn’t come true.
To educate a person who has just been diagnosed with a terminal illness
or just got out of knee surgery, about the average recovery times or averages
as far as how much time others have lived and word it in way that is not an
inevitable prediction is
enough. (Along with all the post
op do and don’ts)
For mental health professionals, share with your clients
that any emotions are okay to experience.
Even if a client doesn’t feel sad or any feelings at all, after a loss,
it is okay. Ask your client what
feelings they are having and normalize these for them. I like clients to find their
metaphor. Ask them what comparison
or even a song that might best describe what they are going through. It helps them soul search a bit and
then allows them to use this metaphor to help others understand them a bit
better. The metaphor may change
over time. I described my feelings
of loss like falling off a cliff.
The feelings can come on very quickly and can be very intense, until I
deploy my parachute. People can
relate to that feeling of panic of falling off a cliff because you can imagine
what this is like or most of us have had the dream of falling off a cliff. For more coping skills and thoughts
about grieving a loss they are outlined at the end of my book, Dragonfly Wings for Emmalee.
For us health care consumers, we need to not expect health
care professionals to predict the future and need to stop asking them to do
so. We can ask for averages, but
need to be careful not to believe this is a prediction. Ask more here and now questions i.e. Are
these feelings or pains normal?
What can I do to lessen the intensity of these feelings or pain? Don’t ask anyone to predict the future!
